we want to hear from you!

Do you live with a rare disease?
Tell us more.

Have you been involved in the
rare community?
Share your experience.

Your story will help us to reach more individuals impacted by rare disease. Using the section below, feel free to write your story, make a video and upload it, or attach some photos. We’ll do the rest!

Write your story

Please tell us how you'd like other people to "do their share" for rare.

Attach your video and/or images

You'll need to provide some contact information below before submitting your story.

You're not done yet!

We need a few small details from you below. Don't forget to accept our terms and conditions and hit submit!

My Information

We will not share this information with anyone. And you will only hear from us if it’s in connection to this project.

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Terms & Conditions

In these Standard Terms and Conditions, “Your Content” shall mean any audio, video, text, images, or other material you provide or display. By providing Your Content, you grant NORD a license to use, reproduce, adapt, modify, publish, translate, and distribute it in our marketing materials and to all media. Your Content must be your own and must not invade any third‐party’s rights. When you publish content or information on “Do your Share For Rare”, it means that you are allowing the public to access and use that information, and to associate it with you. NORD reserves the right to remove Your Content at any time, without notice. We take your privacy very seriously. Subject to the Terms and Conditions above, NORD will never sell or disclose your personal information to any third‐party. By accepting, you agree to these terms and conditions.

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